About Team Watience
Team Watience is dedicated to increasing public awareness of aplastic anemia and other bone marrow failure diseases.
Our goal is to create a caring place where aplastic anemia patients, caregivers, families and interested colloborators can come together to share their experience on healthy grieving, mental health, and disease support programs, especially within the South Asian and Muslim communities.
Team Watience also aims to raise $60,000 for The Hadi Abdur Rasheed Research Fund, founded in 2018 in the memory of Hadi.
We also are working together to promote the National Bone Marrow Donor Program registry, especially in minority communities; to reduce the terrible impact of bone marrow failure diseases, and improve survival rates nationwide.
This website and blog is a place to honor Hadi's legacy, share a bit about life after his loss, and to raise awareness of aplastic anemia and the need for bone marrow research and donations, both physical and financial. It also serves as an outline for me to write about grief about losing a child, becoming a divorcée and having my house catch on fire, all in less than a year.
In September of 2017, Hadi's twin brother, Zakaria threw a book at him. We didn't think much of Hadi's black eye at the time, but then we noticed additional bruises on his back. After a stay at the Fairfax INOVA hospital, Hadi was diagnosed with aplastic anemia.
Aplastic anemia is a rare disease in which the bone marrow and the hematopoietic stem cells that reside within are damaged, causing a deficiency of all three blood cell types: red blood cells, white blood cells, and platelets.
Our family was told that the only cure for Hadi was a bone marrow transplant from a full sibling. His twin brother, Zakaria was tested to see if he was bone marrow match for Hadi. When it was discovered he was not a match, we were sent to the National Institutes of Health to try immunotherapy instead. When immunotherapy was unsuccessful, we were told to go forward with a bone marrow transplant from an unrelated, matched donor and we were very happy to hear that Hadi had many donor matches.
Hadi underwent two bone marrow transplants that were unsuccessful. He lost his battle to aplastic anemia before we could begin his third transplant. Our family is grateful to the bone marrow donors who helped him fight this disease, and we are dedicated to increasing this type of donor support.
“Team Watience” is a phrase that Hadi came up with, a combination of "We Got This and Team Patience."
About the Blog Author Saira Sufi
I am a child loss experiencer, a bone marrow failure awareness/medical research advocate, a Muslim, a Kansan, a mother of twins, the mother of an aplastic anemia warrior, a divorcée, an event manager, and an honest and