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I prefer Matthew Crawley

I watched "Beauty and the Beast" last night, the live action version. It was the first time in forever that I actually watched a whole movie without getting on my phone or deciding something had to be done during the movie like, I dunno, cleaning my vases. I loved watching Leena sing along and hearing Zakaria laugh. Hadi never was too much into movies, which is just painful when you are in a hospital setting. Kid could watch three hours of Peppa Pig but refused to watch a movie. Star Wars became the exception after his second transplant was on May 4th and he decided he wanted to understand "May the 4th Be With You". Aamir made popcorn and I am now thinking about how excited Hadi was about the refillable popcorn bucket at Disney World. I am thinking about how Aamir and nurse Kelly both burned popcorn at the NIH and how there was a "code red" at the exact moment Hadi was waiting for a CT scan and the cause turned out to be...burnt popcorn.

I was so happy to see Be The Match represented at the ADAMS (the mosque we attend) on Friday to get people on the registry and bring attention to Liyna's story. https://www.facebook.com/swabforliyna/. I keep thinking about her beautiful smile but I also keeping thinking about her mother. She obviously raised a beautiful warrior.


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Team Watience aims to create a caring place where aplastic anemia patients, caregivers, families and interested collaborators can come together to share their experience on healthy grieving, mental health, and disease support programs.